European Myasthenia Gravis Day: All Unite for improving the lives of MG patients
June 2nd marked a historical moment for the MG Community – The first ever European MG Awareness Day!
The All United for MG Coalition – who represent MG Patients from 7 countries – issued a political Call for Action at the European Parliament in Brussels with clear recommendations to the European Commission, the European Parliament and European Member States. These recommendations include increasing knowledge, promoting cross-border cooperation, ensuring recognition of the disorder, raising public awareness, providing resources and establishing centres of expertise.
Thanks to the sponsorship of Members of the European Parliament, the call for action was presented at a high level event gathering 45 participants from European Institutions, Patient Advocacy Groups, and other stakeholders.
The call for action has garnered support from Tomislav Sokol (MEP - Group of the European People's Party) and Istvan Ujhelyi (MEP - Group of the Progressive Alliance of Socialists & Democrats) - and our ambition is to further gather signatures and garner supporters throughout Europe. We have successfully gathered signatures, and you can view them by clicking here.
Be part of the change: click here and sign up now to support the All United for MG campaign and stay updated on our progress and initiatives. Together, let's join forces to make a lasting impact. Join the movement today!
Together, we can make it happen
European MG Day is a key milestone in the mobilisation of the MG community who will continue to advocate for a better life, for each and every person living with this disease.
MG affects up to 123,000 people across Europe – with a significant impact on daily life.1,2 It can disrupt routines at home, school and/or in the workplace. And this can go on to affect family, social circles, education or career progression, as well as physical and mental wellbeing.2 But this doesn’t mean that life can’t still be lived to the fullest.