All United for MG in a few words
Myasthenia gravis poses unique unmet needs, driving us to join forces, striving for advancements in research, improved access to care, increased awareness, and ultimately, a brighter future for everyone impacted by this complex autoimmune disorder.
Launched in February 2023, our coalition brings together patient organizations and representatives from different European countries and stands united by the vision of a world where every individual with MG is understood, supported, and equipped to live their best lives despite the burden of the disease.
Our mission & vision
At the heart of our mission is a deep commitment to improving the quality of life for people with myasthenia gravis (MG) and their families. We firmly believe that collaboration among diverse stakeholders is essential to catalyze positive change and drive progress in MG management, research and advocacy.
Looking ahead, we envision a Europe where MG is well understood and well managed. Our coalition is determined and unwavering in its commitment to turn this vision into a tangible reality.
How to work
The governance of All United for MG is based on a collaborative model. With the institutional support of argenx, the coalition’s member associations hold monthly online meetings, providing a platform for all members to discuss upcoming actions and align on strategic initiatives.
Content development is an essential facet of our outreach efforts. This process is managed by an Editorial Committee made up of three member associations that rotate every three months. Each association actively contributes ideas, stories and testimonials that reflect the collective strength and resolve of the coalition.
What drives us
All United for MG is driven by a shared belief that together we can provide a stronger voice for the MG community.
We are committed to:
Raising awareness: We work tirelessly to raise awareness of myasthenia gravis, both among the general public and within the medical community.
Supporting patients: We are here to support people affected by MG by providing resources, guidance and a platform to connect and share experiences.
Advocating for change: : We advocate for improved equitable access to care , increased research funding and policies that benefit MG patients across Europe.
Fostering collaboration: We believe that collaboration is the key to progress. By bringing together patient organisations, healthcare professionals and policy makers, we aim to drive meaningful change.
Take part in our mission
Whether you are a patient, caregiver, healthcare professional or simply someone who wants to make a difference, we invite you to join us in our mission. Together we can create a better future for all those affected by MG in Europe.
Join the movementCoalition’s members
The All United for MG coalition brings together European patient associations and representatives from 7 countries.
Please do not hesitate to contact us for information specific to your country.
You will find below the contact details for each of the coalition's member associations.
ABBM
Association Belge Contre Les Maladies Neuro – Musculaires Asbl
Jean-Marie Huet
President of ABMM
jmh7033@gmail.com
AMIS
Associations des myasthéniques isolés & Solidaires
Pierre Boulanger
President AMiS
pierre.boulanger@myasthenie.com
MG-RO
Asociatia Nationala Miastenia Gravis Romania
Adriana Harja
President of Romanian Myasthenia Gravis Association
asociatia.miastenia@gmail.com
H-MGA
Hellenic Myasthenia Gravis Association
Dimitris Zaftis
Vice President of H-MGA
mr.enduras@gmail.com
Groupe Myasthenique AFM telethon
Groupe d'intérêt Myasthenique – AFM telethon
Annie Archer
President du groupe myasthénique de AFM telethon
aarcher@afm-telethon.fr
MG Face to Face Association
MG Face to Face Association
Sylwia Łukomska
President of Face to Face Mysathenia
miasteniaface2face@gmail.com
EuMGA
European Association of Myasthenia Gravis Patients’ Associations
Lut Allard
Member of the board
allard.lutgarde@skynet.be
Kameleon
Association of people affected by neuromuscular diseases
Anna Wolska
President of Kameleon
wolska.kameleon@gmail.comThe coalition benefits from the institutional support of argenx.
The first European Myasthenia Gravis Awareness Day
An important achievement of our coalition was the launch of the first ever European MG Awareness Day on June 2, 2023.
The European Awareness Day aims to showcase the experiences and challenges of those affected by MG, to promote understanding and to advocate for improved standards of care. Months of campaigning led to this first edition, culminating in the unveiling of six recommendations for concrete EU policy proposals.
Discover our 6 recommendations